Understanding PCOS: A Guide to Your Body, Your Health, and Your Power
Understanding PCOS: A Guide to Your Body, Your Health, and Your Power
Polycystic Ovary Syndrome (PCOS) is one of the most common but misunderstood health conditions affecting people with ovaries. At Comma, we believe that knowledge is power, and when it comes to menstrual and reproductive health, we’re here to make sure you feel informed, empowered, and never alone.
If you’ve ever felt confused by your symptoms, overwhelmed by medical jargon, or dismissed in a doctor’s office, this guide is for you. Let’s break down what PCOS is, what it can look like, and what you can do about it.
What Is PCOS?
Polycystic Ovary Syndrome is a hormone-related condition that affects up to 1 in 10 women and people assigned female at birth though many cases go undiagnosed.
PCOS is rooted in a hormonal imbalance, specifically involving higher levels of androgens (often called "male hormones," though this is a misnomer since everyone produces them). This imbalance can affect how the ovaries work.
What Are the Signs?
PCOS can look different from person to person. Some people have obvious symptoms. Others might not notice anything until they try to get pregnant or start having irregular periods.
Here are the most common signs to look out for:
Irregular periods. This might mean infrequent periods, very long cycles, or no periods at all.
Excess hair growth. Especially on the face, chest, or back (called hirsutism).
Hair thinning or hair loss. Often at the crown of the head, similar to male-pattern baldness.
Acne or oily skin. Especially beyond your teenage years.
Weight gain or difficulty losing weight. Often centered around the belly.
Fertility issues. Some people with PCOS may have trouble getting pregnant because they are not ovulating regularly.
Insulin resistance. Many people with PCOS have trouble using insulin properly, which can increase the risk of developing type 2 diabetes.
Not everyone with PCOS will have all of these symptoms, and having some of these symptoms does not automatically mean you have PCOS. A healthcare provider will use a mix of symptoms, bloodwork, and imaging (like an ultrasound) to make a diagnosis.
Why Does PCOS Happen?
The exact cause of PCOS is not known, but it is believed to involve a mix of genetics, hormones, and lifestyle factors. It tends to run in families and is more common in some ethnic groups, especially among Latinas, Black women, South Asians, and Indigenous people.
There is also a strong link between PCOS and insulin resistance, a condition where the body does not use insulin effectively, leading to higher levels of insulin and androgens.
Is PCOS Curable?
PCOS is not something you grow out of, but it can be managed and that is key. With the right tools, support, and care, you can take control of your symptoms and protect your long-term health.
Management may include:
Nutrition and movement: A balanced diet and regular physical activity can help regulate cycles, reduce insulin resistance, and support mental health.
Medications: Doctors may prescribe hormonal birth control to regulate periods, anti-androgens to manage acne or hair growth, or insulin-sensitizing medications like metformin.
Mental health care: Anxiety, depression, and body image issues are common with PCOS. Seeking therapy or joining a support group can make a huge difference.
Regular check-ups: Ongoing care helps you monitor your symptoms and prevent complications like diabetes or heart disease.
Living with PCOS
PCOS does not define you. It is a part of your health journey, not your whole story. If you have ever felt dismissed, we see you. If you have been struggling without answers, you are not alone.
At Comma, we are here to build period and reproductive care that includes you and your experiences. We are working to improve how we diagnose, track, and support people with PCOS because everyone deserves care that listens.
Where to Start
Not sure if you might have PCOS? Here are a few ways to take action:
Track your cycle in Sara. Notice how often you get your period and how regular your symptoms are.
Note any changes. Use Sara to track your mood, energy levels, and any changes in weight. You can even use Sara’s “Notes” space to jot down any other symptoms you have been experiencing, such as acne or hair growth.
Talk to a provider. Bring your Sara record and advocate for lab work and an ultrasound if PCOS is suspected.
Find your people. Look for PCOS communities, both online and offline. You deserve support.
Trusted Resources on PCOS
Want to learn more? These expert-backed resources offer clear, reliable, and up-to-date information:
PCOS: General Information – A helpful overview from the National Institutes of Health
PCOS Resources (NICHD) – In-depth information on symptoms, causes, diagnosis, and treatment
PCOS Awareness Association – A nonprofit dedicated to awareness, education, and support for those living with PCOS
AskPCOS.org – A comprehensive, evidence-based app and website created by the PCOS Centre of Excellence to help people understand and manage their condition
These are excellent starting points if you are looking to dive deeper or find support.
Join the Movement for Better Menstrual Health
At Comma, we believe your health is worth more than a quick visit and a rushed diagnosis. You deserve compassionate, complete care, and we are here to help build it. We are have developed a tool that helps you track symptoms and cycles in a way that is PCOS-aware, private, and easy to use.
Have questions about PCOS, cycle tracking, or how we are working to improve reproductive care? Let’s connect. This is your body, your story, and your power.
